Friday, February 12, 2010

5 on Friday

As always, here are 5 special reasons I am loving my boy this week:

5. Marino loves being in small spaces. Interestingly, I was the same way as a child. I slept in my closet for a few months and under my bunk beds (as in, under the bottom bunk) for over a year. Here he is in his new favorite spot, a 16 quart storage container that is supposed to hold his play food. Instead, he dumps all the food on the floor and sits in there with his toys and books. 4. Marino loves feeding Max treats. Max is super gentle when taking the treats and Marino squeals with happiness when he feeds Max. Very cute! 3. I made chicken in the crockpot on Monday. I made drumsticks, since the boy loves to gnaw on his chicken legs! Well, the crockpot made the drumsticks so moist, the meat was falling off the bone and Marino was trying to put the meat back on the bone! He loves to eat it off the bone!

2. I talk a lot about Marino's expressive language, but his receptive language skills are also excellent! I really feel like he understands the vast majority of what I tell him (even when he pretends not to, like "stop standing on the couch" or "please don't throw your half eaten clementine slice at Mommy"). Anyway, in our vast time at home while snowed in this week, we've read about, oh, 35 books a day. Out of sheer boredom, I started asking him to show me things in his books that I've never given him a name for before (disclaimer: since Marino is in daycare, I really have no clue how many times he may or may not have been give the names for things before...he often busts out with things I've never told him, like recognizing MLK). I asked him things like "where's the lighthouse?" "where's the cement mixer?" Would you believe he pointed to everything I asked him about? I'm not sure if he was just choosing the things he didn't already know names for, but even so, I was pretty impressed (what else is new?).

1. You know your child has spent too much time in hospitals and doctor's offices when...
he takes his father's iPod ear buds and holds them to his chest like monitors:( !
However, I thought it was rather smart of him to think of that.

Wednesday, February 10, 2010

I May Be 1 and Done, But I'd Rather Be 2 and Through...

I wrote this post a long time ago, and I am just now brave enough to post it. Saying it out loud to the internet makes it real, somehow.


You know how the first question everyone asks after you get married is "When are you having a baby?" Well, after you have a baby, all anyone wants to know is "when are you having another?" This question is asked with increasing frequency once your child turns one. Evan and I have been understandably reluctant to make a decision on having another child. I decided to see a perinatoligist (high-risk ob) in December to get an opinion on what my chances are of having a healthy pregnancy, delivery and baby a second time.

I had a preconception appointment with the MFM (Maternal Fetal Medicine specialist/perinatologist). I basically told him not to make it pretty for me - I wanted to know the real deal. He said my chance of recurrence of pre-eclampsia, based solely on when I developed it last time, is 30-40%. I asked him if I was his wife, would he recommend I have another baby. He said no. He thinks the risk to my life is too great, and his personal feeling is that, for him, his wife's life is too important to risk for a baby he doesn't know and love yet. It was an interesting and appreciated opinion.

In a nutshell, my HELLP came on really suddenly (as far as I knew) and was very severe. From my first symptom to when Marino was delivered was about 3 hours. My blood pressure was through the roof (200s over 100s) and my liver was swollen into my lungs. After my c-section, I lost a lot of blood in an abdominal sheath hematoma (basically a pocket of blood that covered my entire abdominal wall) which was really confusing to my doctors, since the bleeding was not at my incision site. They did an MRI and found the hematoma, as well as other pockets of fluid in my abdomen. They gave me a transfusion and antibiotics (up until today, I thought the antibiotics were needed because of the transfusion, but the MFM said it was because they thought my incision was infected and antibiotics are not normally given with a transfusion). I promptly contracted c.diff (a serious bacterial infection of the colon, which plagues me at this moment), which required a 13 day hospital stay and I ended up having c.diff for 5.5 months and then again this September and currently.

The MFM said he thinks that I was going beginning to go into DIC (http://en.wikipedia.org/wiki/Disseminated_intravascular_coagulation) and that was why the hematomas occurred. DIC is often fatal. Because of the DIC, even if he found a clotting disorder (which often is the cause of HELLP Syndrome), Lovenox or any other blood thinner would not be an option for me, since if I required a sudden delivery again, I would likely bleed to death (apparently, patients with a history of DIC are never given blood thinners). I also could not take baby asprin because of my colitis (no NSAIDs).

He also said the c.diff carries a big risk. My GI doctor said its likely I will just keep carrying c.diff in my colon and it will flare up anytime there is an imbalence in my immune system. C.diff causes serious dehydration, which in pregnancy carries a huge risk of pre-term labor. The MFM said he had just delivered a 32 week baby the previous week as a result of c.diff. The mother became septic and went into pre-term labor.

Another interesting thing he said was that he thinks I had pre-eclampsia at least several weeks before all this happened. I had a growth ultrasound and checkup 48 hours before Marino was born, and they told me he was fine. The MFM said based on Marino's size at the growth ultrasound, he would have been seriously concerned (he was about a pound smaller than he should have been). He also said its not possible for Marino's placenta to have gotten in the condition it was in when he was born in the 48 hours that had passed since the ultrasound, so he thinks they did not look closely enough at the blood flow to the placenta. When Marino was born, his placenta was smaller than the 10th percentile for his gestational age. He said it is absolutely not possible for that to occur in just a couple days, and he thinks development stopped around 30 weeks because of the lack of blood flow to the placenta. Interestingly, Marino also had a true knot in his umbilicial cord (which is extremely rare, it only occurs in about 1% of all pregnancies). This could have been problematic, regardless of the other issues we faced and particularly if I had delivered him vaginally.

I asked if he thought pre-eclampsia in a second pregnancy would be less severe and he said usually in cases like mine, if he sees it again, it presents in a similar way.

He said he would take care of me if I wanted to have another, but his official recommendation will be to look into adoption or surrogacy if we decide to have another child. He also said to definately not get pregnant for at least another 2-3 years to let my body completely recover from what we went through. He basically said I am incredibly lucky to be alive and have a live child. I do feel some relief at getting an honest answer that doesn't downplay what I went through (as I felt I was getting from my regular ob).

Last month, I saw my regular ob, who a year ago was optimistic about my chances of having another baby. This year, he said he agreed with the MFM and he thinks my body has been through too much. In fact, he said he would not be willing to do Essure or tubal ligation on me either...he thinks my body is too unstable for any unnecessary medial procedures. His words to me were "I think you should focus on the idea that your son needs his mother." And who can argue with that? If something were to happen to me due to another pregnancy, how would Marino feel? The thought of him thinking "why wasn't I enough?" is heartwrenching.

It's been almost 2 months since I got this news, and I still shed plenty of tears about it. I do believe there is a reason for this and that the reason just has not presented itself. I'm grateful to have Marino, and in some ways, I love the idea that he will never have to compete for my attention or affection. Certainly, he will always know he is my greatest joy in life. But it's still painful to not be able to make a choice about the size of our family (or at least, a choice between only having one child or getting pregnant again and potentially facing an untimely death). I know that many women would love to have one happy, healthy child and I am so grateful for what I have, particularly knowing what I know now about how dire my health was before/after delivery. But I still feel like I need time to process this information and move past it with a peaceful heart.

Tuesday, February 9, 2010

Happyday Mashis!

That's Marino-speak for Happy Birthday, Maxis! Our Italian Greyhound turns 7 today!


Monday, February 8, 2010

snOMG 2010!!

Ok, enough with the snow already! It was a novelty the first couple storms, but this weekend we got 30 inches of snow. 30 inches, folks! That's a lot, even by my upstate NY "snow is no biggie" standards.

It was a blessing in disguise, of sorts, however, since apparently I have c.diff again and was sick all weekend (and still am sick). It's a good thing I didn't have to go anywhere, because, um, I couldn't. If you're keeping count, this is the FIFTH TIME I've had c.diff in 19 months. The last time was in September. I've really just had it. I didn't even call the on-call GI doctor (they're still not in the office because of the snow), I just started taking Vanco this morning. Tomorrow I'll call my GI doc and get a game plan. Honestly, there's not much I wouldn't do at this point to not have to worry about this infection coming back again. Just the fear of it coming back impacts my life (anxiety) and when I actually have it, I can't function normally. It's even more frustrating knowing that I got it because of a completely avoidable mistake. I went to see a MFM (Maternal Fetal Medicine specialist) in December (one day I will be brave and post that story) and he told me the whole reason the doctors gave me antibiotics after I had Marino was that they thought my incision was infection because it was oozing. It was oozing because I was in DIC, so I was loosing fluids and blood from everywhere inside of my body. So, had an MRI been done initially, they would have seen it wasn't an infection, I wouldn't have been given antibiotics and I would have never gotten c.diff in the first place (you can only get it if a. you're on antibiotics, so your good bacteria are decreased b. you're exposed to it, which is hard to avoid in the hospital and c. you have a weakened immune system). Anyway, it's even harder to swallow knowing the whole thing was avoidable and now this infection is the bain of my existence.

Now that I got that rant out of the way, here's what you all came here for...pictures of the boy (and the snow).

This is our backyard Saturday morning (it was still snowing).

Front yard on late Saturday afternoon (no more snow after this).

Evan made Marino his first "snow shake" (snow, milk, sugar and vanilla extract). He wasn't that into it... he took 2 sips and said "all done"
Daddy and Marino made a card for Grammy Deb's birthday
My aunt gave me this play tent as a hand-me-down from my cousin Clare. This was the perfect weekend to use it (and it has a very appropriate igloo theme).
Sunday, we all went over to Grammy Deb's to watch the game/celebrate her birthday. Marino loved the singing happy birthday part, but he was weirded out by these sparkler candles.



When I asked him if he was rooting for the Saints or the Colts, he said "Colts." My sister-in-law convinced him otherwise by the end of the night.
Max, trying to get some food (yes, he needed a sweater, did you see all the snow?)
Marino ate pizza for the first time - he loved it! He kept going back to Evan saying "bite?"

Side eye to anyone getting too close to his pizza...
We were very lucky that we all had off today. There's no way I could have gone to work with my belly acting the way it is, so it was a blessing to have off. Tomorrow, I do have to go to work (Marino and Evan will be home still), so I'm hoping I can make it and not have to take a sick day.
Thoughts and prayers for the end of this c.diff are welcome (as are any unique suggestions for how to get rid of it for good, if anyone has any).

Friday, February 5, 2010

5 on Friday

Here are 5 special reasons I am loving my boy this week!

5. The boy started saying some new big words this week: penguin and squirrel. I could decifer what he was saying. I found it pretty impressive...those are tough ones! He's also using lots of 2 and 3 word sentences now. Some are gramatically correct (like "go home" and "kick the ball") and others...not so much ("where go Mashis?"). Regardless, its amazing to watch his language develop every day.

4. Today, Evan was giving him kisses good bye, and he said "Daddy? More" and did the sign for more. Evan was enamored, of course!

3. Cute or sad? He knows all the characters on Yo Gabba Gabba by name and shouts them out whenever they come on screen. He REALLY loves Yo Gabba Gabba...YGG = the new duck in Marino world. (For those of you who were wondering, Brobee is his favorite)

2. Whenever Marino sees a picture of a flower in a book, he "smells" the flower. Poor guy probably has a very warped idea of what flowers smell like!

1. On Saturday, Marino pointed out the window and said "snow" which was a surprise in and of itself, since he hadn't seen it in a long time! We've been working on colors with him, but its been slow going (generally, if we ask him what color something is, the answer is always "red.") I asked him "what color is the snow?" and he said "white"!!! Evan and I were shocked and, as usual, proclaimed him a genius:) There will be lots more snow for us to discuss this weekend!

Wednesday, February 3, 2010

So, This Egg Allergy

is apparently more serious than we thought. When we had Marino's scratch test in July (he was 1), the doctor thought he had a moderate allergy to eggs. He wanted to attempt to do a food challenge in 6 months, where they would have him come in and eat a small amount of egg in a controlled environment. We had blood work done on Monday to test his RAST number, to see if a food challenge was a possibility. Well, the PA called us today and said that Marino's RAST number needed to be 5 or less (and it gets down into the decimals, so even a number of 5 is a moderate allergic reaction) to do the food challenge. His RAST number is 44!! She said that is an unusually high number for someone his age so we need to carry an epi-pen with us at all times. There is also a greater possibility now that he won't outgrow this allergy. ::sigh:: I think I am going to start looking into ways to make egg-free treats so he isn't left out of things. We have numerous birthday parties coming up, and I'm not sure how much longer he will notice he is the only one eating clementines while everyone else is eating yummy cake. Poor guy.

My buddy Rachel at http://allergenfreeplease.blogspot.com/ (excellent blog about dealing with childhood food allergies) recommended Ener-G egg replacement, so I am going to hunt that down over the weekend (our grocery store doesn't have it).

Monday, February 1, 2010

Playdate with Gabrielle

Sunday, Marino and I had a big adventure. First, we went to the University of Maryland so I could attempt to buy my books. There was one book I was supposed to have read for class this week, so I couldn't really wait (and school is 45 minutes from home, withouth traffic). So, I brought my toddler to a college bookstore, and got lots of weird looks from 18 year olds (who probably wondered why some old lady was in there with a kid). Lots of them said he was adorable, though, even though he was acting like I was torturing him by not allowing him to climb all the tempting cardboard boxes he saw everywhere. And, of course, they had all my books except the one I needed.

After that, we headed further east to hang with our friends Kristal and Gabrielle, who we hadn't seen since Labor Day! It was great to see them. Gabrielle is the sweetest, most gentle and kind toddler in the world. It was so funny to see them play together...at one point she just laid on the floor like "ok, I give up! Let's just stop moving!!" They had a lot of fun.

Here's Gabrielle waving the white flag!

Marino being his silly self



I thought this was the funniest thing ever...being the mom of a boy, I didn't even know they made fur coats for dolls!
Do you see the madness? The boy never stops!
I love Gabrielle's expressions...
This is my favorite picture of the day!

Isn't she too cute?
They both love Yo Gabba Gabba!
We were both tired by the time we got home! And I still need to track down this book for class!